Wednesday, December 16, 2020

Happy Mira


 I was joking with Mira's nurse that I'm up next! 

 What a great way for Mira to spend her morning. Her reclining chair makes it easy to get her into this position, and with the one-on-one care from her nurse, she can be there with no concern, because her nurse can easily suction or change position when Mira coughs or has other secretion issues. She's been dealing a lot lately with holding her urine, and then being really uncomfortable (her PT showed Matt a way we can hold her over our leg to put some pressure on her bladder to stimulate it to release, and it works most of the time), but she's also retaining a lot of fluid in her feet and lower legs, particularly on the left side.

 In the photo above, Mira's nurse is "milking" her feet and legs to help the reduce the pressure of the retained fluid. It works. Temporarily. But it's still better than nothing.

We're so grateful that we're able to have four mornings a week with this kind of attention for Mira!

(Still haven't touched her birthday post, but there's still a chance I'll get to it.)

Thursday, December 3, 2020

Box surfing!

 

Krassi's here to show off his new sport (hard to get a clear photo because he doesn't hold still!) and to let you know that I started a nice post about Mira for her birthday last week, and maybe I'll finish it and post it someday! But today you just get Krassi. 

That boy - he's into triangles these days (he'll dig through our various sets of building blocks and pull out the triangles and drag them around the house with him all day) and boxes. Any time we get a box, I always give him a few days with it before it heads out to be recycled. Love that goofy, crooked grin!!