Still here

Matt and I made The Switch after church today. Instead of going home after church was over, I drove everyone downtown to the hospital so the girls could say hi to Mira, and so Matt and I could touch in on what's been going on this morning with her. I am now here, and he's at home with the other kids.

Last night we decided to both sleep at home, figuring the nurses all know Mira pretty well after her last stay, and knowing that we both desperately needed the sleep (we've both been fighting strep, and Matt something else as well). Matt's mom was out with her other son for the evening, so we didn't need to stay up to help her with her bedtime medications, so we were free to be in bed by 9:00pm!!! Ten hours in bed, with only three, short, not-requiring-medical-intervention-on-our-part interruptions doesn't solve the fatigue we've been dealing with over the last few weeks, but it sure helps!

Mira is not particularly sick, but she is also not well.

Yesterday, after running a fever in the early morning hours, which was one of our indicators to bring her to the ER, by afternoon her temperature was dropping down as low as 93.7. Even for someone whose body temp runs low, that is low. It's also quite something for your body to have a seven degree swing in temperature within 12 hours! The photo above shows her wrapped up in heated blankets to try to get her back within a more normal range.

I don't fully understand all of the information I'm getting from the doctors through Matt, but it sounds like there are still many questions about our little girl. The neurologist, pulmonologist, and someone from infectious diseases are all addressing different parts of her care during this stay. She's still on a tiny bit of oxygen to maintain good saturation levels, but for the time I've been here is resting peacefully. It seems like in many ways, they are working on information gathering on this unique daughter of ours as she doesn't fit neatly into any category that would guide our plan of care for her.

We really don't have any idea when we'll all be home again. We're still hoping for sometime tomorrow, but the funny thing about waiting is that it is God, not us, who knows how long we will have to wait.

I still think that's one of the reasons that we are so often in the Bible instructed to wait for the Lord. If everything always came to us right when *we* wanted, we would not have nearly the opportunities to live trusting Him to be our supply, our satisfaction, our everything. How long we have to wait isn't nearly as important as how we wait. Because regardless of the length of the wait, it is our attitude during the wait that reflects what we believe. Are we anxious? Or do we trust that God will do everything at just the right time, whatever that time ends up being? It is easy to see him in the times of fulfillment, but it is in the times of waiting that we really get to live out what it is to know him.