The chair that we picked up on Craigslist, and modified in Sofia with foam and positioners, is actually the very chair they want to get for Mira, though in a smaller size, and with a custom molded, removable seat.
With our goal of having her able to sit upright, her daily "work" of being vertical that we are doing with her is now even more important. We started with just simply a few seconds upright as we rolled her in between sides during her diaper changes, and gradually increased the amount of time she spent vertical, until now for the last week or so we've been able to do her bedtime nebs with her sitting upright on someone's lap!
I had also asked if we could get a weight on her in the clinic today, since it's been 3.5 weeks since she was last weighed, and it will be another 3.5 or so before she's in again. Amazingly, she is now weighing 13.6 kg! That is 30 pounds exactly, for our little girl who was around 25 pounds with no change for the last two years. Good job growing, little one!
Since the wheelchair will take so long, would using a stroller help in the meantime? I highly recommend the Special Tomato stroller or one of the Britax strollers. Some communities have a lending system for adaptive equipment. Not only does Mira have to get used to sitting up, but also to motion.
ReplyDeleteHer scoliosis and kyphosis make anything other than a very custom seat impossible for her to use. We have a Special Tomato we used for Krassimir (given to us by a friend whose daughter had outgrown it!) but it's just simply not something Mira could use. We are grateful, though, for the rigged up side-lying contraption we have which does let her get out and move, and hear new sounds, and feel new sensations!
DeleteI just noticed that her hair is getting longer!
ReplyDeleteYes! And it's got a very pretty natural wave to it.
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