Wednesday, September 13, 2017

Those gorgeous eyes

Matt took Tsvetomira to her eye exam this morning. We pushed this appointment out because we didn't figure there was much to learn, or anything critical that would come of it (which is why other things, like nephrology, endocrinology, etc) came first.

We were right. Tsvetomira is completely blind. Her eyes, while perfectly formed, are connected to her brain by optic nerves that are visibly withered. Whether that atrophy is inherent, or from years of no use because the vision part of her brain was never there to make use of the signals is unclear, and ultimately, irrelevant. Those perfect, exquisite, eyes see nothing.

No sight. No hearing. We don't know what she can taste or smell, but it's likely to us that the answer to that is similar to what she can see and hear.

So, touch is what she's got. What a profoundly silent, lonely world, and what a reminder to us to make the most of the one connection she has to the world - touch.

4 comments:

  1. She looks nothing like the child you brought home. What a lovely girl she is maturing into.
    What is next for her? Do the doctors think that her spine can be straightened, or is it better left alone?

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    1. I may try to write a post about this question...

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  2. Touch is obviously working. Those eyes may not have sight, but they are absolutely full of LIFE now!!

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  3. She is so beautiful! Lovely little girl!

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