Busy week

1) Tsvetomira had a birthday! As of Monday, she's 14 years old. We ate ice cream with sprinkles in her honor, and sang (with one of us touching her so she could at least feel what we were singing!)

2) Matt finished the shelf that separates the opening between the living room and his office! Along with that, he was able to put in the last piece of floor trim in the living room, so the living room is finally completely done. Now all he has to do for the west addition that we began over six years ago to be finished is to do a bit of sheetrock mudding, sanding and painting on the doorway into his office. Not bad.

3) Tsvetomira qualifies for nursing-level care, and has officially been approved for up to 38 hours a week as of July, but we haven't been able to find someone, until this week! On her birthday, we had a nurse start her training. She'll come three mornings a week for about four hours just to help with Mira's morning cares in the hopes that a) Matt can get to his desk sooner and b) we can keep closer tabs on how she's doing overall and hopefully catch her declines sooner. It's a great arrangement. Her son goes to school a mile and a half from our house, so she drops him off and comes here. When school's off, she can stay home with her son as those days are generally more flexible for us anyway.

4) Bobbi, for the first time, was told by a person she had just met that they couldn't tell at all that she had an accent! It's definitely still there, though diminishing continually, but it was kind of cool for someone to be that surprised that she was born in a different country and didn't start learning English until she was 16 years old!

5) Daddy and Mira, after a six month hiatus, have made their trip together down to the ER at Regions to check out her lungs. She's such a tough call to make. Over the afternoon she just went downhill, so after pie at church tonight, they headed down. Of course, he reported that they got there and she was satting at 96% on room air, instead of the 90% or lower that we'd been seeing while she was on oxygen here at home. But they said her lungs sounded "wet" which they didn't yesterday when our nurse was here, and they'll be doing x-rays. Very probable that she'll be admitted to Gillette. But still, six months in between is a definite record for her!

6) Our friendship with Gillette began nine years and one day ago today. It was two days before Thanksgiving, 2010, when Reuben went into Gillette as a "normal" kid and on his second day had his first two really big seizures, and BOOM, just like that we had a diagnosis of epilepsy the day before Thanksgiving.

"Before" we knew anything

"After." Still just our sweet little baby boy.

It was exactly nine years ago today that I woke in the night needing to use the bathroom (ten weeks pregnant with Rinnah), and walked to the hallway bathroom instead of risking using the in-room one and waking Reuben. It was standing outside that bathroom door that I had the revelation: I'm not afraid to adopt a child with special needs because I am already the mother of a child with special needs. I just didn't know it until today. It almost made me want to ask Matt if he wanted me to run Mira down tonight instead of him, just to walk down that same hallway on this anniversary. Never did I dream what God had in store for us, and it's humbling to look back and remember those little steps he was already taking to prepare us for this and whatever still lies ahead.

6b) Ebenezer is, within a week, the same age that Reuben was when we got Reuben's initial diagnosis. It's been an interesting anniversary this time around as we have another 16.5 month old little male human around the house - but a very different one from Reuben.

 

 

We call Eben our Duplo Man because he loves to build and disassemble these towers! He's really picky about the blocks he uses - they have to all be the same size - none of the double tall or double wide make it into HIS towers!!

7) And tomorrow is Thanksgiving! Our church had its annual Pie and Thanksgiving night tonight, and the theme this year was Ebenezer, as in a time of remembering how God has helped us up to this day as a way of encouraging each other to trust in his continued care into the future. Fitting, I'd say!

?) I didn't mention it, but we've been without Big Blue for three weeks!!! After an original estimate of $12,000 to repair it, we found another smaller shop that could do it for less, but it would take longer as they didn't carry the parts on hand, so would have to order them piecemeal as they needed them. For a few thousand dollars in savings, we went for it. It's SO nice to have our vehicle space back as of yesterday! We were grateful that Owen has bought himself an old pick up truck that seats five, so we could at least still get to church on Sundays while down our big vehicle!