oh, how I hate typing on the iPad!!! But we're having trouble getting the laptop connected to the wireless in the hotel room, so the iPad is the way we have to go.
I know many of you are waiting to hear about B, but since we've spent most of our time with T so far, that's where I will put my energy now. We've had two visits with her: one yesterday and one today. Yesterday's visit included many seizures. As we'd been led to expect from her file, the seizures are plentiful, but, how do I say it, minimal. She does not stop breathing during her seizures. We saw a number of ones where her whole body goes rigid, but her breathing is not impacted, and they're short - counted in seconds, not minutes.
When she opens her eyes, you can see how beautifully golden-brown they are. I've never seen eyes quite that color! All of her features are very delicate, and her hands, though always in little fists, are beautiful.
At both B's and T's, we had to signs statements saying we will not publish publicly any of the photos that we've taken with the girls until the proceedings are finalized, which I know is not what many of you have been hoping for!
This morning during our visit with T she was much more peaceful, with hardly any of the tonic seizures we saw yesterday. We're hopeful for her sake that this is a more typical state for her, and that yesterday the seizures were worse because of meeting us for the first time - different voices, different sounds, different touches. We were also encouraged to hear her cry out a bit when she was moved at one point, showing us that she definitely responds to external stimuli. If she cries when she doesn't like something, it's that much more likely that some of her other responses were really positive responses.
Off to our afternoon visit with T. More later...
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