Friday, April 14, 2017

Feeding Frenzy

Turns out feeding your child via a g-tube is the thing to do around here! After Mira had her first tube replacement, we ended up with not only the used mic-key button, but also the unused backup that we had which is now .5cm too short for her, so is not something we have any use for.

This means that two of our lucky girls are now in a position to set a date for their own baby's g-tube surgery! In the meantime, they've all been collecting their supplies - used extension tubes, and syringes in sizes that we don't use, or are otherwise not needed (some of them are worn so that the markings are no longer visible, which is not so useful for Mira, but they're still great for delivering "meds" to a doll!)

Evania's feeding syringe is the largest of the "small size" ones that I have, so even when fully extended, her short, fat, little fingers can still reach!
Notice Gloria's hand is on the plunger of syringe Leah is using. Love how nonchalantly she munches on her big apple chunk while "helping" Leah "feed" her baby.

Apparently even rabbits can be tubies!
The stories surrounding these "children" of theirs are just as varied as the creative solutions they have for adapting what they can find around the house to meet their needs. (Leah has a suction machine made out of a bright pink shoelace for one of her daughters!)

The girls, too, are still very much involved in the real care-giving activities that happen around here on a daily basis. I am so grateful that the work involved in caring for Mira is something that is helping us to grow closer together.

2 comments:

  1. In this last photo Mira's face looks to me more like her natural age and not so much like a baby. This is bittersweet. To me it means she's getting the nourishment and care and love she's always needed, but the juxtaposition with her size and condition because of people doing NOTHING is still so very jarring. I'm glad she is getting stronger, look at her sitting up in her sisters arms!!

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  2. I love seeing this! I guess my girls aren't the only ones whose dolls require regular medical intervention.

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