Thursday, May 24, 2018

And...they're gone again

Mira is NOT doing better, so she and Daddy are back downtown again. We'll see what comes of this one. Poor girls sat's are sitting at 86-89 this morning instead of 87-91. Not a good direction. She was also slightly floppy this morning as we were changing her - also very not typical for her, since excess muscle tone is her challenge.

We're so grateful again for Rose's presence in our weekly routine. She was here at 8 this morning to help get the boys ready for their therapy run and school. Reuben ended up staying home today because he's JUST showing signs of maybe coming down with something, but that means we had all the available hands we needed to get things moving - Dad and I got Mira ready to go back to the hospital while Owen pushed Bobbi up the hill to the high school while Leah brought some of her work outside so Reuben could sit happily by his fountain without fear of him wandering away.


Once again, I'll let you know what I find out when I find it out!

In the meantime, despite the challenges it brings, it's kind of odd how times like these are some of the times I'm most glad that we decided to make Mira our daughter. It is just right for her to go through these things with her Daddy by her side instead of all alone.

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