Brief on Krassi

Krassi had a followup appointment with his rehab doctors at Gillette today, and I was disappointed, but not entirely surprised, to see that his weight is down again. After our most recent peak at 33 lb, 12 ounces, he was down to 33 pounds at the ER a week ago and down to 32 lb, 10 oz today. This is still higher than the previous peak at three weeks home of 32-7, and is potentially explainable by the illness we've dealt with, but once again, not the direction we're hoping to see him go.

We are working on finding the right dance between pushing to get as much good food into him as we can, and not undermining his trust in us and our love for him (and not just our duty to put food into him) by making mealtime a time of undue stress. I'm grateful for Dondi's comment from personal experience that a g-tube is not the end of the world. That helps me keep the big picture in mind.

On a slightly lighter note, Krassi has discovered that balloons are a lot of fun to play with. This is particularly neat to see because when we brought along a balloon when we first met him last March, he was not really interested at all. This little guy is expanding his world in so many ways!

Krassi playing at home this past week

Krassi playing with us last March