We made it home

As expected, there was not time to post last night about our big home coming. ;) But I did want to throw a few photos out there to show you that we really are home!!

We played it safe yesterday, and Mira lived on the dining room table for the rest of the day - even at supper time! Grandma kept commenting about our new centerpiece. ;) We're not concerned about her rolling just yet, but always had someone on guard just in case. Here I'm in the middle of feeding her, and Owen's in the middle of math. She had one short seizure, but otherwise a great day.

First night sleeping in her very own bed! We've got her feeding pump in its backpack hanging on a hook in the doorway. Hanging above her head is a sweet little drawing Leah made for her.

She slept quite well, waking up crying twice, but very easily settled with mommy stroking her hair and talking to her.

Guess what we got to do on our first full day home? Go back to Gillette!! 

Their dental clinic is notoriously difficult to get into because they're scheduled out so far. Over the twelve days we were inpatient I kept asking if someone could just come and look at her teeth, but it didn't work out. We were grateful they were able to get us an appointment so soon (when we tried getting one for Krassimir when he first came home, it was over six months out!), so we took it. Well, this is how it went. I walked up to the desk, was told to wait, waited for about two minutes, and the hygenist came out to call us in. She asked me if Mira was going to sit in the dental chair or just lie in her chair. I said she'd stay in her own chair. We wheeled back to an open bay, and she asked if I had any concerns about Mira's teeth. Why, YES!!! Her gums are terribly inflamed, red, and tender to the gentlest touch, and most of her teeth are ground to practically nothing, pocked, and look like they'd need to be pulled. She called the dentist, who came, took one look in her mouth, and sent in the person who does pre-operative registration. After going through that paperwork, someone from the office walked in and said she was "scheduled" for June 15th, the first available, but that Mira was first in line on the cancellation list, so we should expect a call with about 24 hour's notice and they'd get her in. That gives you some idea of how bad they think her teeth are. I have a feeling that she didn’t just happen to be the only child waiting on a cancel list, but they realized immediately that she needs some attention given to her mouth, not only for her comfort, but for her health! So she’s first in line for a cancellation.

Still, it would have been nice if someone from dentistry had been able to take 6.5 minutes to walk from the dental clinic to the inpatient neurology wing, three minutes to look at her mouth, and then 6.5 minutes to walk back. It would have saved us a lot of monkeying around to get Bogomila and the boys to therapy and me and Mira to Gillette at roughly overlapping times with one vehicle (because our little car is too small for Mira's chair!) Oh well. We accomplished what we needed to with that one! 

I haven't held her like this since the last day of our visits last September. It was SO much easier today, probably partly because I'm more accustomed to how her body works, but also because she's just enough more relaxed that she "fits" a little better than she did back then.

Today she was not up on the table, but in a protected, but accessible corner between the dining room and the computer room. She had three different sisters combing her hair over the course of the afternoon, and Gloria visiting, too. This is Gloria's "smile for the camera and squint for the flash" look.