Mira is now completely off any breathing assistance, and is just getting a little bit of oxygen, though even that level they've been tapering off, and she's keeping her saturation in the upper 90s or at 100, so that's all good.
She's been awake a bit, but mostly sleeping. Last night was very uneventful - I slept through the whole night, not even waking when they came in to change and roll her.
Still no talk about when she's coming home, so we're still coordinating with friends to get the coverage we need to keep life moving along with the regular weekly appointments for the other kids (Bogomila especially does NOT like to miss her physical therapy sessions!)
So, all is well on the Mira front (or at least as well as can be for a child in the intensive care unit!) and things are all moving in an upward direction.
One of the biggest failings of our medical system is that we don't feed our sick when they need healing nutrition the most. I did massive amounts of research into this. Clear IV fluid isn't nutrition, it's electrolytes and hydration, but no calories beyond a wee little bit of glucose (sugar) sometimes, which can put a person into a hyperglycemic state.
ReplyDeleteTPN is a type of IV nutrition that has actual calories. Long-term there are some risks to the liver. After just 24 hours of no food, a human is in a state of chronic starvation and starts to metabolize their own body (stored fat and muscle).