So, the update on Mira.
On the outside, she looks great. Breathing room air with no assistance, sleeping peacefully, good color, relaxed. But on the inside, not so much. She does have mild pneumonia, which after three days of antibiotics is just last night starting to show some slight improvement, but the bigger deal is the UTI (which we've now learned that vomiting can be a symptom for a UTI).
After a doozy of a time getting a urine sample, including six failed attempts at cathing, they finally got a sample, and after some more time, got the results of the culture last night, and it's E coli, and a nasty, drug-resistant form of it. At 11pm last night the doctor called us with the results, and with their proposed plan of attack - there's only really one good drug to try that the culture seems to respond to, but it's a close cousin of the one that they think caused the severe anaphylactic reaction during her first ER visit back in the spring. As a precaution before they started it, they wanted to move her to the PICU so they would be pre-armed with staff and all necessary medical interventions in the case that she did has a negative reaction to this med, too.
The even more important reason to get the infection under control and soon is that there are signs that it has spread to her blood. Definitely not a good thing.
Thankfully, she did NOT have a reaction to the new med, so they moved her back to the regular floor this morning, and hopefully this one will do the trick.
Anyway, we're back to thinking this is going to be longer than just a few days' visit to our favorite hospital.
I hate to recall how familiar all of this sounds to me, with our bed-bound little. How often she dealt with things just like this, and how often we were sad and frustrated and worried and scared. And how often she came through it with her little warrior spirit. Although she was bedridden for 3 years after brain cancer at 3 and brain damage due to nearly 10 months of very aggressive treatment, a lot of what your babe is dealing with feels very familiar. Winter was always the hardest. I am rooting for your babe just as hard as we once rooted for ours. I hope she battles this one out and then gets some reprieve for a while. I hate to wonder how it must feel to be sick back to back to back, and being unable to tell us what hurts (that was one of the hardest parts for me, once our babe lost her abilities to communicate with us) or what feels unwell. It's not fair, but I I pray for capable hands and medicines and a break at the end of this for her to just feel well again.
ReplyDeleteOh, precious Mira. We're still praying for you.
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