Heading in the right direction

Caring for Bobbi continues to be all-consuming. Not only is she unable to move herself at all, so requires regular moving to eliminate pressure sores, we need to plan in regular times for time spent on her tummy, time in her knee-moving machine (a minimum of three times a day on each leg for a minimum of thirty minutes), and time for routine things like eating, brushing teeth, toileting, some sort of sponge bathing, etc, etc, etc. Every day gets easier, and her pain is diminishing dramatically each day, but we're still WAY behind on sleep, and simple things like getting to the store, and are incredibly grateful for all of the people who are spending time here with us, either to give some attention to the other kids, or to visit with Bobbi, or to spell me or Matt so we can sneak some naps in during the day. We've had friends run to the store for us, and bring meals, which has been amazing.

We had time to tackle a hair wash today, using the same diaper method that we used on Mira before she got her bath chair.

Looks kind of relaxing, huh? The diaper absorbs most of the rinse water, and the chux underneath catches any stray bits. Her short hair cut is a LOT easier to keep nice than even her previous cut.

Watching Mom wash Bobbi's hair was an entertaining experience for a number of the small people.

And, in a fashion that hasn't happened for a while, we had a regular dance party a little bit later after Bobbi was up in her chair. We have a real appreciation for this sort of chaos.

Here's hoping we get some more sleep tonight. Last night was a good night. I got two 2-hour stretches, and Matt's were a little longer because he wasn't nursing a baby after our times awake like I was. Bobbi slept in nice and late this morning, so she's closing up her sleep gap.

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Mira continues her stay in the PICU. What they had thought on Tuesday was going to be a short run through the PICU to stabilize her body temp has turned into two days with no talk of moving to a regular floor. We still don't really have a good idea what she's really in for...she's just not doing well, in typical Mira fashion - she keeps us on our toes. We are extremely grateful in this case for her previous hospital stays. We are VERY limited in our ability to be there with her during this stay, but every shift has been staffed by at least one nurse who knows her, and all of the doctors know her, and they are amazing at communication, so given the circumstances, I can't imagine her in better hands. But we still wish she was home in her little corner of the dining room where she belongs. But she's not ready for that just yet.